GP visit for hip pain

I saw a GP this morning and he confirmed that I have osteo-arthritis and, in his words, will likely need a hip replacement operation at some stage, but that this will be put off for as long as possible. He will refer me to the musculo-skeletal clinical to see a physio. Both of my sisters and my son (41) have osteo-arthritis.  No suggestion that this hip pain is worse because of the chemo-radiation treatment. But I asked him to write to my oncologist to suggest that the MRI/CT scans I am booked to have in August as my three-year routine follow-up look at my hips/hip-joints.  I take glucosamine sulphate/chondroitin sulphate extract/vitC on the recommendation of a friend.  Am not sure what I think (as the formal evidence suggests no effect), but I thought I'd give it a go. Thanks for all your support everyone!  

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Hi Mary! My hip pain was non existent prior to treatment ..so I'm thinking it had a lot to do with it...and all the anecdotes on this site from survivors suffering from it to some degree. When I have gotten the results back from my follow up CT scans they always make mention of the deteriorated areas in my lower back...but I've never had them check the hip areas... probably wouldn't be approved by my health insurance.
Take care!
Sara
Mary, Lucky like this comment
Same here, now daily varying pain.
Mary, Lucky like this comment
So we need to know what research there is on this. Hard to know causal relationship as osteo-arthritis tends to develop as people age. Do you think a radiation>hip pain/bone damage causal relationship is understood or under-acknowledged?
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Being the whiner I am I think all chemo/radiation>everything damage causal relationship is NOT understood and under-acknowledged
absolutely agree! we are still a sort of orphan disease and it is often hard to recruit enough patients to do a trial or study some new treatments.
I haven't even considered hip replacement because of the radiation damage and possible complications and just wonder how I improved my osteo arthritis, after the radiation (my last post) other than walking and massage).

I wonder if anyone has done it after undergoing rad/chemo like this?
Mary, Lucky like this comment
Good question! I didn't have time in a 10 minute slot to ask. But it's very much in my mind. I was told last summer that there was no evidence of radiation damage in my hip bones (small fractures). But I rule nothing out... Your post about keeping active has really encouraged me to keep on being active.
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One thing I think will benefit anyone, especially those of us who received this treatment, is that exercise is extremely important, especially as we age. The natural response to arthritis pain is to stop moving, but that’s usually the worst thing you can do. Most doctors recommend daily exercise at any age. Best to you, and thanks for keeping us up to date on your findings!
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Yes, I'm just beginning to wake up to the importance of exercise. I wasn't really fully convinced or guided or motivated until recently. I had the four NHS sessions in a group that my GP practice offers, designed for people with hip and knee problems. I found that very helpful. I went back to the ordinary local gym yesterday and rather overdid it. Getting a gentle balance is trickier than it might seem.
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I had no hip pain prior to treatment. However, I am a 64-year old runner, so I'm sure that has something to do with it. However, I do believe that radiation is at least 50% responsible.
Mary likes this comment
Mary,
I have had 2 total hip replacements as well as the radiation/chemo treatment for the cancer. My first THR was before the cancer and the second was last summer, 2 years after the cancer treatment. Lucky me. YOU will know when and if you need a hip replacement. I waited until summer when the doctor said i was ready to have it back in the fall. I got to the point where walking a block was almost impossible - i was bone on bone - no cartlilage left at all! If you don't have pain, you are no where near needing a THR. I also take/took glucosamine but sometimes it isn't enough - mine was congenital. Best of luck - please reach out if you have any more questions.
Melanie
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Thank you for all the messages. I have been prescribed exercises by my physiotherapist. Tough to fit them in, especially when I'm so stiff! In July, after my trip to Australia to visit my son, I get four free (NHS) sessions at a group exercise class, that might help me to get into the habit. I'm taking three glucosamine MEGA most days. Sometimes I eat kefir which is supposed to be good for health generally, including mental health. I feel it does improve my mood. https://www.yemoos.com/pages/faq-milk-kefir-intro - the milk is good for bone strength too, so win/win!
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April 16, 2018

London, United Kingdom SW14

January 2, 1959

Cancer Info

Anal Cancer

Squamous cell carcinoma

Stage 1

0.1 - 1.0 cm

Grade 1

No

Empathise, share experiences and practical tips. Share new reliable research knowledge

The Marsden, Sutton, England

August 22, 2015

No

originally: tiny amounts of bleeding, fecal incontinence, passing of clear mucous. Later itching at the site of the tumour.

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